Fishing is the new Build-A-Bear. Caroline decided she simply loves to fish.
Admittedly, she believes we're at Mickey Lake and she's about to reel in a big red gooey fish, but hey, a girl can dream.
Probably the best part of fishing, since we don't catch anything, is the anticipation. Envisioning the big catch. And isn't that what us biomed parents are doing all the time?
Constantly thinking about how we're going to elicit the next big gain, we open our tackle boxes of supplements, and choose the ones most likely to deliver a "big catch."
Sometimes, it's easy to decide what to give. But sometimes, when the symptoms morph, you're no longer sure. You question everything. Ask everyone. But it gets you nowhere. Further confused by differing opinions and finding it hard to focus because there's you child...
Until you can take no more! And that's when you throw open the latch, reach in the box and go with your gut.
At our house, Caroline's been serenading us with verbal stims for the past 3 weeks. While talking and humming to herself, she's worn her pacing pattern into the floors.
All the while, I've been watching, wondering. What could it be? Since it's onset coincided with the June 4th full moon, I first suspected parasites.
One of the hottest topics in the autism community lately, for good reason, is parasites. Specifically, how a majority of children with autism are affected by them. And really, all people are affected by them to some extent. A good introductory article is: Parasite Alert - 3 signs to watch out for
In summary, here are the 3 red flags you are carrying a parasite:
Chronic digestive issues ~ even with a highly alkaline diet rich in good bacteria.
Mental distress ~ anxiety, depression and behavioral changes.
Autoimmune disorders ~ including irritable bowel syndrome.
Sure sounds like they're describing our kids, don'tcha think?? So many of us are feeding our kids near 'perfect' diets and they still have the above issues.
Treating parasites is no longer on the periphery. It's front and center. A mainline autism protocol that many believe you must do if you want to achieve further gains ... or reel in your biggest catch.
In the tackle box, there are a myriad of parasite protocols. Some strictly natural, some prescriptions, and many, many theories on which is best.
It was a tough choice. But, for now, with the help of Dr. Usman, we've decided to begin the following at the next full moon (July 3):
So there I sat, 2 weeks until the full moon, always the fisherman, wondering what I could do in the meantime.
A brilliant friend with an RD (Recovered Daughter.... which is often superior to an MD in this community), wrote a blog about Thyroid issues. Since treating Caroline's thyroid more aggressively has been on my list for a while, I thought maybe it was time.
But then, it hit me. Somewhere between the glass of wine to celebrate the "2 months off Diflucan Anniversary" and leisurely skimming "Stop the Thyroid Madness," I realized, the thyroid would have to wait. The unthinkable had happened..................The god-forsaken yeast was back.
Staring me right in the face and I didn't even see it.
The pacing. The scripting, The verbal stims. The increased fogginess. The decreased engagement.
Where was my brain? In the past, we always had night waking and giggling with yeast. But since Bacopa transformed our nights into blissful stretches of actual rest, I quite naively didn't suspect the yeast beast.
Which is odd, because it's usually a tendency to blame everything on yeast. Climbing on furniture. Yeast. Laying on floor. Yeast. Doing absolutely anything out of the ordinary. Yeast. You know the drill.
Somehow, I had shifted one hundred and eighty degrees and no longer had yeast as suspect numero uno.
When I finally saw it, I decided to restart Diflucan, to see what would happen.
The first day was uneventful. The second & third were marked with heightened stimmy-ness, but it was different. She was not as disconnected. Not in a fog, more engaged. More communicative.
The nights, though, became reminiscent of nights we'd left in the past since our love affair with Bacopa began 6 weeks ago. Awake. Wide awake. Scripting. Singing. Having the time of her life.
And there I was, back in the kitchen at 3 AM, mixing potions in a feeble attempt to stop her racing mind. Just like old times.
In die off hell.
The only consolation was that at least we started fighting before treating parasites, which surely would've bought us a one way ticket on the Yeastville express.
The Pau d'Arco, Candex and biotin that we were using when we removed diflucan were not enough to keep the yeast in check. Next time, we'll need more players.
I'm working on an improved natural yeast protocol, because at the first sign of a tic.... and I'm sure there will be one.... the mighty Diflucan's reign will be over again.
And why the tics? As diflucan kills off yeast, the balance in the gut shifts and bacteria begin to overgrow... even with antimicrobials and massive doses of probiotics on board. The Diflucan is too strong. The bacteria love it. They enter the limelight, causing tics, OCD and other assorted craziness.
A fish story.
According to Caroline, she's angling for the biggest red gooey fish in the lake. There may even be a grandiose story about how she landed it.
But from us, you'll get a straight report. Just the facts -- good and bad -- as we embark on a more aggressive parasite treatment plan and try to determine which natural supplements will better control yeast.
Hopefully, the reduction of parasites will reveal even more of Caroline at her best. We're in a prime location. PANDAS is a distant memory. Round 62 of chelation is up next. Our tackle box is pared down and we're ready for results.
Some big catches are on the horizon. They are visible from our boat. We're rowing closer and casting out...
Gone Fishing. Back at dark-thirty.
UPDATE: At the end of day 3 1/2, die off is nearly over. Life is good.